Fast forwarding to our precious girl’s most difficult day on November 18, 2011. A normal school day for all the kids; Zach, 11 (now 16), Charlie, 5 (now 10) and Jeremy, 3 (now 8). We were both practicing attorneys and had lots of nanny support. I was headed out the door to litigate a custody trial and hoping to win custody for a dad of two young girls. Jason had child drop off duties and then he was off to work. Just prior to leaving the house, in the morning chaos, Sarah walked from her room to ours to greet us with good morning. As she approached the kitchen area, she began to gesture downward towards her feet and we were trying to figure out what she needed. Maybe she stepped on a bee? Maybe she twisted her ankle? Maybe she stepped on a hair bow? I left the house in a fury off to court and dad, Jason, off to drop the boys at preschool and then within 10 minutes, Sarah’s nanny called to say that something was seriously wrong, that Sarah had collapsed in front of the couch. I learned of this as I was walking into the courtroom and Jason rushed back to meet the nanny at the house to go to the hospital. My head was spinning with thoughts, but I had to focus on my client. Hours go by and no text updates from Jason. Lunchtime arrived and Jason said, it’s not good. How could it not be good? How much worse could this child be affected physically- she already had a genetic brain disorder.