For four days, I just sat and stared at her legs. Then, finally her toes started to move. She was an inpatient for one month and then received intense outpatient therapy for several months. Although we are truly grateful for how far Sydney has come, it hasn’t been an easy road adjusting to her new lifestyle. Sydney walks with an abnormal gait. She suffers from fatigue, pain, spasticity, muscle atrophy and has residual bowel and bladder issues that are controlled somewhat through medication. A year ago, Sydney was hospitalized for Osteomyelitis in two of her vertebrates and surrounding tissue. Recently, she had a surgery on her left foot to correct some of the damage from TM; it did not go as planned. Nevertheless, Sydney continues to remain positive and determined; never giving up hope. I think I’ve learned more from this sweet girl about the true meaning of life than I could have in a lifetime. She is amazing. We hope and pray for a cure for these rare neuro-immune disorders. I am so thankful we can share her story to spread the word and also for her to know she is not alone.